Exton graced the world with his early arrival on February 28, 2017. His parents were overflowing with love for this tiny perfect person they had created. A few hours before they were to be discharged home, a nurse noticed a possible marker for a genetic abnormality and then a cardiac echo was done. Exton's mom, … Continue reading Extra Exton
Ventilators
Parade of Costumes
One of the great things about Halloween is the opportunity to be able to dress up as anything you want to be. For one night you can be your favorite hero, or your own nightmare. It's also a chance for our families to show off their creative talents, and let me tell you, these guys … Continue reading Parade of Costumes
Sick Season Prep
Being the parent of a medically complex child, you tend to quickly turn into a germaphobe. You probably own double digits of hand sanitizers, lysol sprays, and have mastered the art of giving the evil eye to anyone who doesn't cover their cough or sneeze. As you should! Once sick season hits, everyday germ watch … Continue reading Sick Season Prep
So, Your Child Is Going Home On A Ventilator
That's a scary sentence to hear. How on Earth can you manage a life sustaining device at home... by yourself? When it comes to your kids, people can do AMAZING things, including this. In this article we will go over the basics, see what everything looks like, and get a little groundwork to get you … Continue reading So, Your Child Is Going Home On A Ventilator
