It's December, so that means it's that time of year we are overloading Amazon's system and ordering Christmas gifts for family and friends. The parent of a medically complex child can be difficult to shop for, but one of the most deserving people on any Christmas list. I've found that these every day hero's really … Continue reading Christmas Gifts for Caregivers
Exton graced the world with his early arrival on February 28, 2017. His parents were overflowing with love for this tiny perfect person they had created. A few hours before they were to be discharged home, a nurse noticed a possible marker for a genetic abnormality and then a cardiac echo was done. Exton's mom, … Continue reading Extra Exton
November is still caregiver month, and sometimes we forget how much care the siblings of medically complex kids provide. Having a child with special needs changes the family dynamic. Now one individual needs the attention of someone constantly, instead of attention being spread around evenly. This can be a confusing and emotional time for the … Continue reading Siblings of Medically Complex Kids
Bronchopulmonary dysplasia, more commonly referred to as BPD, is one of the most common chronic lung diseases in children. BPD typically affects premature infants with low birth weights. This patient group will have under developed lungs. Some babies who encounter respiratory distress shortly after birth may also be at risk. White males seem to be … Continue reading What is Bronchopulmonary Dysplasia?
Once you finally break free of the hospital and get to go home as a family, the last thing you want is to go back to the hospital any sooner than necessary. These are a few of the best tips compiled from multiple sources to help you have the best air quality possible flowing through … Continue reading Air Quality at Home
Being a parent is hard. You are completely responsible for another human life. You're not only responsible for keeping them alive, but also for providing for all of their needs and giving them the best life possible. That's a stressful task for a normal healthy child. When you are the parent of a medically complex … Continue reading Raising Warriors
One of the great things about Halloween is the opportunity to be able to dress up as anything you want to be. For one night you can be your favorite hero, or your own nightmare. It's also a chance for our families to show off their creative talents, and let me tell you, these guys … Continue reading Parade of Costumes
Fall brings sweater weather, crunchy leaves, pumpkin spice everything, football, and of course RSV. Fall to Spring generally means lock down and minimal visitors for medically complex families. So what is RSV and why is it so scary for our babies? RSV stands for respiratory syncytial virus. It starts out with upper respiratory symptoms like … Continue reading RSV Season And You
Here's the grand finale of Respiratory Care Week. Just keep breathin'! Good luck not getting this stuck in your head, but hey you'll learn the respiratory system. https://youtu.be/m-vJc1olyec Respiratory therapy. You may think it's easy, but it's SNOT!
Being the parent of a medically complex child, you tend to quickly turn into a germaphobe. You probably own double digits of hand sanitizers, lysol sprays, and have mastered the art of giving the evil eye to anyone who doesn't cover their cough or sneeze. As you should! Once sick season hits, everyday germ watch … Continue reading Sick Season Prep